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Cystic Fibrosis ResourcesWeb SitesCystic Fibrosis Foundation care center networkThe Cystic Fibrosis Foundation care center network provides expert care for people with the disease. The centers are staffed by teams of dedicated medical professionals, including nutrition, pulmonary care, and gastroenterology, as well as psychosocial specialties. The National Institutes of Health has cited the network as a model of effective and efficient healthcare delivery for a chronic disease. http://www.cff.org/LivingWithCF/CareCenterNetwork Cystic Fibrosis FoundationThe mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. http://www.cff.org/ The American Lung AssociationThe mission of the American Lung Association is to prevent lung disease and promote lung health. The American Lung Association has many programs and strategies for fighting lung disease. http://www.lungusa.org/ Human Genome Project InformationThe Human Genome Project (HGP) is sponsored in the United States by the Department of Energy and the National Institutes of Health. The knowledge, resources, and technologies provided by the HGP to the medical industry has aided the diagnosis, monitoring, and treatment of genetic diseases, such as cystic fibrosis. http://www.ornl.gov/sci/techresources/Human_Genome/home.shtml Support Groups
Cystic-LCystic-L is a free email service dedicated to the exchange of information and support specific to cystic fibrosis. http://www.cystic-l.org/ CysticFibrosis.comCysticFibrosis.com provides support forums for the cystic fibrosis community. http://www.cystifibrosis.com/ cfparentscfparents provides a place for people to discuss issues specific to raising children who have been diagnosed with cystic fibrosis. The group provides a place for parents of children with cystic fibrosis to come to for support and information. http://health.groups.yahoo.com/group/cfparents healingWell.comHealingWell.com is a thriving community and information resource for patients, caregivers, and families coping with diseases, disorders and chronic illness, such as cystic fibrosis. The site also provides forums and chat. http://www.healingwell.com/cysticfibrosis/
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