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Growth Hormone Resources The following Web sites and discussion groups provide useful information about growth hormone deficiency and excess conditions. Web Sites
acromegaly.orgacromegaly.org is a satellite site of the Pituitary Network Association. The site publishes up-to-date information about acromegaly and its treatment.http://acromegaly.org Human Growth FoundationThe Human Growth Foundation is a voluntary, non-profit organization whose mission is to help children and adults with disorders of growth and growth hormone through research, education, support, and advocacy.http://www.hgfound.orgLittle People of AmericaLittle People of America (LPA) is a nonprofit organization that provides support and information to people of short stature and their families.http://www.lpaonline.org The MAGIC FoundationThe MAGIC Foundation is a national, nonprofit organization dedicated to help children whose physical growth is affected by a medical problem. The site provides information on numerous growth hormone conditions, including chronic renal insufficiency, childhood and adult growth hormone deficiency, intrauterine growth retardation, hypopituitarism, small for gestational age, and Turner syndrome.http://www.magicfoundation.org The National Organization of Short Statured AdultsThe National Organization of Short Statured Adults or NOSSA is a non-profit organization of men 5 foot 7 inches and below and women 5 foot 2 inches and below in height. NOSSA promotes the message of self-empowerment, providing a supportive environment in which to share experiences, and committed to opposing heightism in society.http://www.nossaonline.org Noonan Syndrome Support GroupThe Noonan Syndrome Support Group is intended for people whose lives are touched by Noonan Syndrome, and want to exchange experiences and hopes regarding our children (or us).http://www.noonansyndrome.org/home.html Pituitary Network AssociationThe Pituitary Network Association (PNA) is an international non-profit organization for people with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.http://www.pituitary.org Prader-Willi Association (USA)The Prader-Willi Syndrome Association (USA) provides information, education, and support services to individuals affected by Prader-Willi syndrome (PWS), their families, and interested professionals.http://www.pwsausa.org Turner Syndrome Society of the United StatesThe Turner Syndrome Society of the United States creates awareness, promotes research, and provides support for all people touched by Turner Syndrome.http://www.turnersyndrome.org
Discussion Groups
AcromegalyThis is an open forum support eGroup for "Acromegaly." It has been established for patients, family, educators and medical professionals interested in sharing information and/or support for persons affected by this rare disorder.http://health.groups.yahoo.com/group/acromegaly DwarfismThe Dwarfism List is an interactive forum for discussions related to dwarfism. Serving the short-statured community since 1996!http://health.groups.yahoo.com/group/dwarfism Growth_Hormone_DeficiencyA TransGlobal Health support community for people affected by "Growth Hormone Deficiency."http://health.groups.yahoo.com/group/Growth _Hormone_Deficiency HGF-PEDSThis support list is a service for members of Human Growth Foundation who have a child with a disorder of growth or growth hormone; and/or an interest in disorders of human growth and/or growth hormone.http://www.hgfound.org/pedsupportlist.html HGF-ADULTSThis support list is a service for adult members of Human Growth Foundation who have disorders of growth or growth hormone; and/or an interest in disorders of growth or or growth hormone.http://www.hgfound.org/adultssupportlist.html LPA Online CommunityThe official online discussion group of the Little People of America provides information about what's going on in the organization, as well as discusses issues pertaining to dwarfism.http://health.groups.yahoo.com/group/lpa_online MAGIC_ListThis group is sponsored by MAGIC Foundation and is here for support, encouragement, and advice on the issues associated with raising children on Growth Hormone Therapy.http://health.groups.yahoo.com/group/MAGIC_list PNA ForumThe PNA Forum posts patient messages relating to the diagnosis, medical treatment, and quality of life of pituitary patients.http://www.pituitary.org/forums Prader-WilliThis is a list for family and friends of people with Prader-Willi Syndrome. This list is to discuss the good and the bad of Prader-Willi and to help bring us together for sharing info or making friends.http://health.groups.yahoo.com/group/Prader-Willi
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